February 28, 2013

Hannah's new feeding pump back pack thats smaller then the one we were given and girly!! I'm so excited about it. I ordered some trach pads that I'm very excited to try the next time she's sick and has secretions bubbling out of her stoma. $45 for all this cute girly medical stuff! 

9x7 (Hannah's middle name is Marie)


Trach pads in the front right, gtube button buddies in the back

February 22, 2013

Public swimming pool with a Trach

  I took BOTH girls to the pool for the first time! It was amazing! I brought a hand full of HME's, a bib (with a plastic backing), the ventilator and the emergency bag to the pool. Hannah was soo excited and Hailey was actually enjoying the pool. Usually Hailey just wants to look around and be held. This time Hailey wanted to run around, play and drink the water. 
 At first it didn't feel like any different then taking Hailey to the pool but after about 5 minutes sitting on the stairs I started to freak my self out a little bit about all this water around Hannah, every little splash made me jump.. but I calmed down a bit after I put her bib/splash guard on. Like most little kids in the swimming pool Hannah turned a little bit blue making it really hard to tell if she was turning blue from not being able to breath or because she was cold. The pool was also really noisy so it was hard to hear the sounds of her breaths. But all and all it was a really good experience, lost 4 HME's in the pool and the girls had alot of fun. I'm glade Hannah got to experience something semi normal, she really enjoyed sitting in the shallow end of the pool splashing her hands in the water and walking around holding grandmas hands.

February 18, 2013

Girls getting ready for the first birthday party they were invited to!

February 07, 2013

Tracy Russell Photography

We were nominated for a free 30 minute photo session with Tracy Russel Photography on January 1, for The Olivia Act. 

"The Olivia Act named after one of the children killed in Newtown, was started by a photographer who wishes to be anonymous. Olivia’s family had family pictures taken a short time before she was killed. Those pictures are precious and now priceless to them. Upon hearing this, this photographer was moved to give away a 30 minute family photo shoot and has challenged other photographers to do the same. We go about our daily lives and sometimes we don’t take the time or have the resources to have family photos taken."

Tracy Russell photography:

Hannah & One of her nurses

February 04, 2013

Nanaimo hospital Feb 4, 2012

February 4th 2012, Second transferee to Nanaimo hospital... 294 days / 9 months 19 days spent in the hospital(so far), So hopeful to be home with Hannah in a week. 
1st and only bath together as twins

 Our first sleep over as a family.... The day before we were sent back to BC Childrens hospital