August 09, 2012

Hannah's Day Schedule

6:00-7:00 am  Wakes up on her own, diaper change and possible suction needed.

6:00am   Feed should be finishing around this time. When finished rinse feeding bag and run water through tubing (or replace the bag if its time for a new one)

Feed off from 6:00-9:00( flexible ) for play time or bath and trach ties/trach change

8:00-9:00 am Medications (if feed is starting give before starting the feed)

  • Ventolin(blue puffer) 2 puffs with spacer
  • Flovent(orange puffer) 1 puff with spacer
             5ml flush before meds
  • Viargra 6.4mls (heart med)
  • Lasix 0.8mls (fluid retention med)
             5ml flush after meds

Naps around 9:00-10:00am for an hour

Play time after nap

Feed ON from 12:00-3:00pm
Feed OFF from 3:00-6pm

After noon nap starts around 1:00pm

2:00pm Medications

            5ml flush before med
  • Viagra 6.4mls (heart medication)
             5ml flush after med

2:00-600pm wakes up from nap, play time.  May nap once more.

7:00pm start getting ready for bed, put into jammies, read a story. 

8:00pm Medications:

          5ml flush before
  • Ventolin(blue puffer) 2 puffs
  • Flovent(orange puffer) 1 puff
  • Viagra (heart med) 6.4mls
  • omeprazole (stomach acid med) 4mls
  • lasix (water retention med) 0.8ml
          5ml flush after

8:00pm Lights out, start feed that runs untill 6:00am

Hannah's allowed off:
  • feed for 6 hrs a day
  • ventilator every 4 hours(while awake) for an hour
  • Humidifier all day

Hospital day 482
1 year  3 months 25 days

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