July 09, 2012

Nystagmus "Dancing Eyes"

Always trust your mothers instincts. I'v been saying since the beginning of Hannah 's TCU stay(3months) that something is wrong with her eyes I think she has a lazy eye. They got her eyes checked again last week (when I was away with Hailey), today they tell me the full details of her check up: She can only see an arms length away clearly, she can see things farther away just blurry and she has Nystagmus. The doctor told me it's something in her brain causing her eyes to be wobbly and she will be seen in Victoria by a specialist.
So of course like any mom I have spent the last few hours googling the condition.


Nystagmus is fast uncontrollable movements of the eyes. Side to side, up and down or in a circle, Hannah are side to side. So far it only seems like one of her eyes(right eye) is effect or is strongly effected. Infantile Nystagmus Syndrome(INS) is present at birth or a few months after. Risk factors with premature babies are incomplete development of the optic never, albinism and congenital cataracts.. Acquired Nystagmus develops later from diseases , brain injury or certain kinds of medications but is usually found in adults.
From what I have read if its Infantile she will have it for the rest of her life, and if its Acquired it might go away with time. I first noticed her eyes back in October after her open heart surgery so she was pretty drugged up but it was only a few months after her due date so it would fit both of them. :(

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