The RT(respiratory nurse) just came in and crushed my dream of being home in July. We had classes booked for the next couple of weeks that they now have changed to less classes because Hannah isn't ready for home and she isn't on the proper equipment yet to learn on. She also said that Hannah still isn't stable enough with the trach to even consider home so not to get to excited for home and that her setting are almost ICU settings instead of PICU settings. The Doctor talked to me after and said that he though more like August. I've given up hoping to be home for summer maybe September is more of a resoniable time.
Hospital day 397
1 year 1 month 1 day