My biggest concern is I have to rely on other people for EVERYTHING. I though that I wouldn't be able to leave Hannah with just anyone but that I would have to take her everywhere if I needed to do something.. I didn't think about how I can't drive a car with her and Hailey in the back.. someone would need to be back there with her incase the ventilator popped out or if she needed a suction.
So I will need someone to drive us around while I am in the back with them or we will have to take the bus or walk to where we need to go.
These are things Doctors don't tell you. or at least they haven't yet...
I miss low flow